Understanding Tethered Oral Tissues (TOTs) and Oral Dysfunction in Babies

Are you curious about Tethered Oral Tissues (TOTs) and their connection to oral dysfunction in babies? In this article, we'll explore the definition of TOTs, what oral dysfunction entails, and the potential long-term impacts of untreated TOTs. Plus, we'll delve into the importance of early assessment and therapy for better outcomes. If you're concerned about your baby's feeding difficulties or other related issues, keep reading to learn more.


Tethered Oral Tissues (TOTs) Explained

Tethered Oral Tissues, commonly known as TOTs, refer to restrictions in the oral area, including ties of the tongue, upper lip, and buccal (cheek) tissues. These limitations are often caused by short and thick frenulums, which hinder the movement of the tongue, lips, or cheeks. To accurately determine if a "tie" is present, it's essential to conduct a functional assessment rather than relying solely on anatomical observations. TOTs are typically associated with genetic factors, specifically the TBX22 gene. Moreover, research suggests a potential correlation between prenatal folic acid supplementation and an increased risk of TOTs. Folic acid, a synthetic form of vitamin B9, is found in fortified wheat and grain products, while folate is present in natural foods like leafy greens, eggs, and citrus fruits.

Over the years, there has been an 834% rise in tongue tie diagnoses from 1997 to 2012. This increase could be attributed to greater awareness, higher breastfeeding rates, or other factors yet to be identified.

Recognizing Symptoms of TOTs in Babies

Parents and caregivers need to be aware of the signs and symptoms of TOTs in babies. These indicators can include:

  • Difficulty latching or shallow latch

  • Clicking sounds during sucking

  • Ineffective milk transfer, poor weight gain, and failure to thrive

  • Irritability or fussiness while breastfeeding

  • Frequent popping on and off the breast and dependency on a nipple shield

  • Inability to hold a pacifier in the mouth (possible sign of dysfunction)

  • Fatigue or quick falling asleep during feeding

  • Frequent cluster feeds or more feedings than usual

  • Chewing or gumming the nipple

  • Cheek dimples while sucking and absence of lip flange

Understanding Oral Dysfunction

Oral Dysfunction is a comprehensive term that encompasses various conditions affecting the face and mouth's normal and healthy function. These conditions can result from musculoskeletal or neurological issues. Therefore, it's crucial to engage in therapy before scheduling a tongue tie or lip tie release. This therapy aims to evaluate the extent of the restricted frenum's impact on function and assess the influence of body tension, muscle tone, and the baby's nervous system. Pre-operative therapy can often help avoid the need for a tongue tie release while preparing both the baby and their family for the most efficient feeding techniques, even with biomechanical or anatomical restrictions. This approach significantly enhances the success of release procedures.

Potential Long-Term Impacts of Untreated TOTs

Not addressing TOTs can lead to potential long-term consequences, such as:

  • Sleep disordered breathing

  • Speech and feeding difficulties

  • Open mouth breathing

  • Reflux

  • Improper palatal and facial development

  • Enlarged tonsils and adenoids

  • Cavities and crowded teeth

  • Chronic ear infections

  • Behavioral challenges

Take Action for Your Baby

If your baby is displaying signs of feeding difficulties, reflux, frequent hiccups, or if you simply have concerns about their oral health, please reach out to us for an evaluation. Don't hesitate to reach out to a healthcare provider for assistance. Even if you're not in the Philadelphia area, we can help connect you with a suitable provider near you. Early intervention can make a significant difference in your baby's well-being.

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Meet Kelsey: Holistic Pediatric OT, Lactation Counselor, and TOTs Advocate